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  Ariel Henley writes movingly about her experience here with Crouzon syndrome, a congenital craniofacial anomaly.  In craniofacial surgery, the goal is to create more normal appearance, that doesn’t trigger comments in passing and most important, harmonizes how “normal” the patient feels inside, with their outer appearance.  It’s hard work and tremendously rewarding.

Effy Redman penned a lovely essay about her experience with Mobius syndrome.  In this congenital deformity, the nerves that supply the muscles in the face don’t develop properly, so children have little to no expression.  A “social smile” develops by around 6 weeks of age, so very quickly there can be a disconnect from the baby’s feelings, and what others Continue Reading…

Over at Refinery29, they collected great advice about how to plan for a breast augmentation.  See the best (which we agree with!) below: First things first: Do a little homework. While an indiscriminate Google search on boob jobs, lifts, or reductions will probably take you down a rabbit hole of overwhelming (and sometimes dubious) information, focused initial research is crucial. Continue Reading…

Over at Byrdie, one woman has written her account of having breast reduction surgery: “I felt like I finally recognized the person looking back at me. I was confident in a way I hadn’t ever been before. It didn’t have as much to do with the way I looked, but more about the way I felt from minute to minute. Continue Reading…

After the recent win of deaf contestant Nyle DiMarco on America’s Next Top Model, another woman with Treacher Collins syndrome (a craniofacial anomaly) wrote about her experience auditioning for the show.  I applaud her honesty in describing her challenges and frustration with the standards of beauty. “We live in a world of difference, a world that so far, has not Continue Reading…

We carry the EarWell ear molding device, and it was just profiled on NPR! Between one-fifth and one-third of infants are born with prominent or misfolded ears.  Immediately after birth, the cartilage is very flexible, thanks to circulating estrogen left over from pregnancy. The ears are especially malleable. Some misfolded ears unfold on their own shortly after the child is Continue Reading…